Alanna had her 18 month check up several days ago. Yes, she is almost 20 months. My intention was to make her 18 month appt when we moved so it could be her first appt with her new Dr but of course we never moved.
Alanna is amazingly healthy. Her heart diagnosis that we recieved overseas was an extra chord (no big deal, like an extra finger). And a small hole that has closed up, no murmur can be heard. But I really wanted her checked out just to give her the all clear on her heart, so she has an appt for an ECHO next Friday.
I find it interesting that both times I've taken her to the dr. for her routine check ups they hand me the same sheet they hand me when I take my other children. This just seems odd to me. I'm not overly sensitive, trust me, but couldn't there be an alternative with real information on children who have Down Syndrome? Does everyone's elses doctors do it the same way?
Also, I had read about the Down Syndrome Growth Chart. Our children with designer genes tend to be smaller, so there is a custom growth chart. The doctor didn't refer to that, he used the typical growth chart. Again, it does not offend me, but as a mother wouldn't I want to know how my child is doing in comparison to children like her. Again, I'm not seperating her. But how would you feel if you took your child to the doctor and they used a growth chart for children with Down Syndrome. Would that tell you anything about their development?
My Lanna girl is 90th percentile on height
50th percentile on weight
and 75th for head cirmcumference
That is on the Down Syndrome Scale, I forget what the dr said about the typical scale.
The Down Syndrome Scale can be found here www.growthcharts.com
I'm going to do another post on our ENT visit and see what you guys have to say about that, I love others input.
She goes to PT once a week, both myself and the PTs agreed this was adequate, she is very strong for a child with Down Syndrome and I work with her at home as well. She will be starting OT with an a lady out of her home soon. There is very limited resources in our area for pediatric PT and OT, it is shocking really. My girls see some great PTs but it was like pulling teeth to get them access at first. I only found out about the OT through someone else who goes to her.
Alanna does not handle the immunizations well. (please don't start an immunization debate on my blog, there are other places for that) I only allow them to give her several at a time and she still runs a low grade fever after and sleeps the next day away. We woke her up from her nap after she'd been sleeping for 5.5 hours!!