Monday, August 22, 2011

Eye Appointment

Alanna's eyes cross. They both cross in, but not necessarily at the same time or to the same degree, and not all the time. The doctor looked at her eyes, he agreed "yes, I do think they are crossing" mmmk.
So they gave her the drops to dialate her eyes, we waited 20 minutes then he took a lense and a light to look and check for refraction to see if she is farsighted. None of which she appreciated.
He explained all kids are far sighted, but kids with with disabilities such as Down Syndrome are more prone to it. He said the plan would be for her to wear glasses all the time. Until sometime when she is 5,6,7, 8, or so she will outgrow the farsightedness. Her eyes are crossing in an effort to see, so supposedly the crossing will stop with the glasses because she will be able to see.
He said he wanted to see her back in 1 month. Of course there is an eye shop attached to his office, so he gave us a coupon and sent us on our way. They tried 2 pairs of glasses on her, both metal frames, which seemed very unrealistic to me, the glasses will be over 200.00 and I can see her reaching up and breaking those in about 10 seconds flat. So I am researching our options.
As I was about to leave the room, the docotor says he wants to ask me something personal. "Why in the world would you want to adopt a 4th child when he already have 3" (he had asked earlier if she was my only child) My big response was "because we wanted to, and we could, so we did"
I did not get the vibe this is what he wanted to ask me, I think what he was getting at was why did you adopt a child with special needs when you have children already. He went on to say he just didn't understand, etc... Why would anyone want so many children? He said he had 3 and that my kids must just be better behaved than his because it was hard. To which I said "must be, my kids are pretty amazing"

Other useful sites

Saturday, August 13, 2011

18 month Check Up

Alanna had her 18 month check up several days ago. Yes, she is almost 20 months. My intention was to make her 18 month appt when we moved so it could be her first appt with her new Dr but of course we never moved.
Alanna is amazingly healthy. Her heart diagnosis that we recieved overseas was an extra chord (no big deal, like an extra finger). And a small hole that has closed up, no murmur can be heard. But I really wanted her checked out just to give her the all clear on her heart, so she has an appt for an ECHO next Friday.
I find it interesting that both times I've taken her to the dr. for her routine check ups they hand me the same sheet they hand me when I take my other children. This just seems odd to me. I'm not overly sensitive, trust me, but couldn't there be an alternative with real information on children who have Down Syndrome? Does everyone's elses doctors do it the same way?
Also, I had read about the Down Syndrome Growth Chart. Our children with designer genes tend to be smaller, so there is a custom growth chart. The doctor didn't refer to that, he used the typical growth chart. Again, it does not offend me, but as a mother wouldn't I want to know how my child is doing in comparison to children like her. Again, I'm not seperating her. But how would you feel if you took your child to the doctor and they used a growth chart for children with Down Syndrome. Would that tell you anything about their development?
My Lanna girl is 90th percentile on height
                            50th percentile on weight
                    and  75th for head cirmcumference
That is on the Down Syndrome Scale, I forget what the dr said about the typical scale.
The Down Syndrome Scale can be found here

I'm going to do another post on our ENT visit and see what you guys have to say about that, I love others input.

She goes to PT once a week, both myself and the PTs agreed this was adequate, she is very strong for a child with Down Syndrome and I work with her at home as well. She will be starting OT with an a lady out of her home soon. There is very limited resources in our area for pediatric PT and OT, it is shocking really. My girls see some great PTs but it was like pulling teeth to get them access at first. I only found out about the OT through someone else who goes to her.

Alanna does not handle the immunizations well. (please don't start an immunization debate on my blog, there are other places for that) I only allow them to give her several at a time and she still runs a low grade fever after and sleeps the next day away. We woke her up from her nap after she'd been sleeping for 5.5 hours!!

Thursday, August 4, 2011

Photo Shoot

Reeces Rainbow wanted a recent picture of my pumpkin pie (my son Cooper says I need to stop calling her that because she is going to think I'm going to eat her!
So, I put her in a cute outfit I had bought before we even brought her home and tried to take some pictures. She was not feeling well, and was not cooperating. Really, a 19 month old not ready and willing to perfectly pose for the camera??!! But I love capturing even her cranky moods.
Here are a couple of my favorites: