Almost 2 years Old!

I can't believe I haven't blogged in 2.5 months. Actually I can, because I thought of it often, just never did it.
In un-Alanna news, we are moving!! As in RIGHT now we are moving. We are PCSing to Langley AFB, VA. I am so excited. That has always been at the top of my list.
We are in between places right now. Trying to buy a house. Just LOTS going on.

Of course what you came here for Ms Alanna.
I cannot believe my baby will be 2 in a couple weeks! She has grown so much in the barely 8 months that we have had her. To think she didn't know how to smile, laugh, reach up to be held, cry for attention, etc...

Let's see, how about a Stimming Update first!
I realized it had gotten much better, but I didn't realize HOW, much better till my FIL said to me the other day "she doesn't hit herself in the head anymore does she?"
Well, she does, but I would say about mmm, maybe 10-15% as much as she used to. No joke! She did become obsessed with bouncing the back of her head off the couch cushions for several months, but that has eased up quite a bit.
I contribute this mostly to her knowing to come to me when she wants something so she is  not as stressed as before. Also, she is just too busy! She went from having little interest in toys, unless we sat them right in front of her and played with her to her dragging out all her toys to play everyday, for lengthy periods of time.
My goodness, as a I typed that tears run down my face. She is no longer trapped inside her little neglected body, too emotionally neglected to know how to deal with things. She is so full of life now!
People who have down syndrome are know for not liking change and she def displayed this when we went on a little trip just her and I to Ohio to visit my sister and my new nephew. First she had a little stomach bug, but then she was just all over the place emotionally. Refusing to eat, screaming at even the sight of food, every meal except the one she slept through was spent with her screaming.
She does display some self harm behavior when she gets upset, which tears at me. She will scratch and pry at her mouth, she pulled her own hair, etc...
The minute we were back home, she was back to her old self. Like someone flipped a switch!

I know that trip was hard for her, most likely combined with the stomach bug she had. But we are always on the go, so I think the best thing is just to keep her as used to it as we can. We have been at my inlaws for a week now, and she is doing really well.

I'll post a few pics and update more the next couple days.

21 Months Old!

My Lanna girl is 21 months old today. It makes me sad she is getting big too fast. The changes I see in her are amazing to me. Every single one makes me so emotional.
She is exploring her environment sooo much more. She crawls all over the house. We used to have to put her toys in front of her. Now she goes over and picks out the ones she wants and drags them over to play. She is starting to have a sense of humor. She has her favorite Baby Signing Times DVD and when I put it in she gets so excited.

She's getting a little sense of humor. She likes to hear me laugh, so she gives me this big cheesy smile. It cracks me up everytime. I looove it. She does it to other people to like her therapists. Little Ham.
She is pulling up on everything and cruising! She signs eat. She says Mama!! (not regularly but at times)
Her favorite place to be is in my lap. She pulls to be picked up then turns her little self around to sit down. We had friends over watching a movie and she sat in my lap the whole time.
When she got restless in church service this past Sunday I went and took her to the 2 year old (the 1 year old room was empty, I guess everyone turned 2) Normally this would just trigger a lot of stimming. The room was packed. She crawled right over to the toys and pulled some toys off the shelf to play with. I was so proud and happy for her!
This morning she crawled into the dining room, normally she goes in there to lick the chairs, haha. I could hear her, I didn't hear any stimming just babbling. A couple minutes later I went in there and this is what I found

My Smart Head Banger

This chick is too smart. Her favorite stims have to do with her head, mostly hitting the side of her forehead. Sometimes very hard, mostly when she is tired or something is wrong. Her new stim. (overall her stimming has lessened) is bouncing her head off the couch. She sits with her back to the couch and bangs/bounces the back of her body off the couch cushions. If she is in front of the arm of the couch it is hard and she cries, then scoots over to where the cushions are, LOL. She tests banging her head on other surfaces, like walls, tables, floor, but she does it very slowwly and only once then she decides, nope that will hurt. Thank God!! I let her bounce her head off the couch because it's much better than any other surface!!

A Few Of Her Favorite Things

It's somewhat challenging to find toys that are easy enough for Alanna to manipulte in a manner that will keep her attention. So I thought maybe you guys might want to see some of her favorites and maybe your kiddos would enjoy them as well.

I picked this up at a nice toy store, I think it was 12.99, they have it on Amazon for a couple bucks cheaper. I love amazon! You fill it up with water, there are little floating fish. She can hear and see the water splash as she hits it, she loves it.

http://www.amazon.com/Earlyears-Fill-Fun-Water-Mat/dp/B000E82WRM/ref=sr_1_1?s=books&ie=UTF8&qid=1314401898&sr=1-1

Another favorite is her Leapfrog activity table. I love any Leap Frog products, they are well made and engage the children well.

http://www.amazon.com/LeapFrog-Learn-Groove-Musical-Table/dp/B000ETRENI/ref=sr_1_1?s=baby-products&ie=UTF8&qid=1314401983&sr=1-1


This ball popper toy, she loves!! What kid wouldn't. But we have to be right there to pick up the balls that pop out and to push the button to make it go, it is too hard for her. She knows to push buttons, but this one is too hard.
http://www.amazon.com/Hasbro-8490-Playskool-Busy-Tumble/dp/B000GB4EAA/ref=pd_sim_t_37

Apartly if you are that determined, you can buy this modified one.
For a hefty price of course.

http://www.amazon.com/Enabling-Devices-Adapted-Air-tivity-Popper/dp/B004XJ4MX0/ref=sr_1_68?s=toys-and-games&ie=UTF8&qid=1314402591&sr=1-68

We have a regular Fisher Price xylophone, but she doesn't hold onto the stick to wack it. This one she I linked to she loves!! The keys are very easy to make go down, and it's fairly loud.  

http://www.amazon.com/Little-Tikes-Baby-Tune-Piano/dp/B001QXDIVS/ref=sr_1_17?s=toys-and-games&ie=UTF8&qid=1314402350&sr=1-17

I'm not sure what this toy is called. But it's for young babies to lay under and hit and play with the toys. She loves going In things, so she goes under it and places, or rocks back and forth.

She loves this Baby Einstein Ball.

http://www.amazon.com/Baby-Einstein-30974-Bendy-Ball/dp/B001UF8BL4/ref=sr_1_1?ie=UTF8&qid=1315360267&sr=8-1

And this ball popper, it is easy enough for her to push down. She has another one just like it that she can't do.
http://www.amazon.com/Hasbro-8490-Playskool-Busy-Tumble/dp/B000GB4EAA/ref=sr_1_12?ie=UTF8&qid=1315360356&sr=8-12

Her number one favorite toy is her Johnny Jump Up, I picked it up at a consignment store for 12.00, the BEST 12.00 ever spent.
It is great for her sensory needs. The things she does in there are amazing! She sticks one foot to the floor then uses the other to go around and around, then lifts her legs to spin around. etc...
She is outgrowing it. I have been looking at indoor swings, does anyone have one they love?
I highly recommend the Johnny Jump Up with the tray, it provides a little buffer between them and the doorway.
Like this one

http://www.amazon.com/Graco-Bumper-Jumper-Little-Jungle/dp/B000WJLKQM/ref=pd_sbs_ba_1

What are your kids' favorite toys?

Eye Appointment

Alanna's eyes cross. They both cross in, but not necessarily at the same time or to the same degree, and not all the time. The doctor looked at her eyes, he agreed "yes, I do think they are crossing" mmmk.
So they gave her the drops to dialate her eyes, we waited 20 minutes then he took a lense and a light to look and check for refraction to see if she is farsighted. None of which she appreciated.
He explained all kids are far sighted, but kids with with disabilities such as Down Syndrome are more prone to it. He said the plan would be for her to wear glasses all the time. Until sometime when she is 5,6,7, 8, or so she will outgrow the farsightedness. Her eyes are crossing in an effort to see, so supposedly the crossing will stop with the glasses because she will be able to see.
He said he wanted to see her back in 1 month. Of course there is an eye shop attached to his office, so he gave us a coupon and sent us on our way. They tried 2 pairs of glasses on her, both metal frames, which seemed very unrealistic to me, the glasses will be over 200.00 and I can see her reaching up and breaking those in about 10 seconds flat. So I am researching our options.
As I was about to leave the room, the docotor says he wants to ask me something personal. "Why in the world would you want to adopt a 4th child when he already have 3" (he had asked earlier if she was my only child) My big response was "because we wanted to, and we could, so we did"
I did not get the vibe this is what he wanted to ask me, I think what he was getting at was why did you adopt a child with special needs when you have children already. He went on to say he just didn't understand, etc... Why would anyone want so many children? He said he had 3 and that my kids must just be better behaved than his because it was hard. To which I said "must be, my kids are pretty amazing"

www.solobambini.com
www.miraflexglasses.com
www.tomatoeye.com
www.specs4us.com



Other useful sites

http://leahlefler.hubpages.com/hub/Kids-Glasses-Choosing-Eyeglasses-for-Childrens


http://littlefoureyes.com/photo-gallery/

18 month Check Up

Alanna had her 18 month check up several days ago. Yes, she is almost 20 months. My intention was to make her 18 month appt when we moved so it could be her first appt with her new Dr but of course we never moved.
Alanna is amazingly healthy. Her heart diagnosis that we recieved overseas was an extra chord (no big deal, like an extra finger). And a small hole that has closed up, no murmur can be heard. But I really wanted her checked out just to give her the all clear on her heart, so she has an appt for an ECHO next Friday.
I find it interesting that both times I've taken her to the dr. for her routine check ups they hand me the same sheet they hand me when I take my other children. This just seems odd to me. I'm not overly sensitive, trust me, but couldn't there be an alternative with real information on children who have Down Syndrome? Does everyone's elses doctors do it the same way?
Also, I had read about the Down Syndrome Growth Chart. Our children with designer genes tend to be smaller, so there is a custom growth chart. The doctor didn't refer to that, he used the typical growth chart. Again, it does not offend me, but as a mother wouldn't I want to know how my child is doing in comparison to children like her. Again, I'm not seperating her. But how would you feel if you took your child to the doctor and they used a growth chart for children with Down Syndrome. Would that tell you anything about their development?
My Lanna girl is 90th percentile on height
                            50th percentile on weight
                    and  75th for head cirmcumference
That is on the Down Syndrome Scale, I forget what the dr said about the typical scale.
The Down Syndrome Scale can be found here www.growthcharts.com

I'm going to do another post on our ENT visit and see what you guys have to say about that, I love others input.

She goes to PT once a week, both myself and the PTs agreed this was adequate, she is very strong for a child with Down Syndrome and I work with her at home as well. She will be starting OT with an a lady out of her home soon. There is very limited resources in our area for pediatric PT and OT, it is shocking really. My girls see some great PTs but it was like pulling teeth to get them access at first. I only found out about the OT through someone else who goes to her.

Alanna does not handle the immunizations well. (please don't start an immunization debate on my blog, there are other places for that) I only allow them to give her several at a time and she still runs a low grade fever after and sleeps the next day away. We woke her up from her nap after she'd been sleeping for 5.5 hours!!

Photo Shoot

Reeces Rainbow wanted a recent picture of my pumpkin pie (my son Cooper says I need to stop calling her that because she is going to think I'm going to eat her!
So, I put her in a cute outfit I had bought before we even brought her home and tried to take some pictures. She was not feeling well, and was not cooperating. Really, a 19 month old not ready and willing to perfectly pose for the camera??!! But I love capturing even her cranky moods.
Here are a couple of my favorites: